Wednesday, July 23, 2008

In Which I Go To Boston

A couple of months ago, I wrote about some neurological problems that I have. For those newcomers who haven't read through the archives yet, I would suggest clicking on that link to read the story. Quite frankly, it is a long story and I don't feel like typing it out again.

Go ahead and click on the link. I'll be here waiting for you to come back.


All done? Okay, good.

I haven't written much about my health since then, because I'd feel like I was complaining or seeking sympathy for my problems. What I have going on is nothing compared to what other people go through, and I don't want to make a big deal out of it. With that said, I want to mention a couple of things without it coming off as if I'm throwing a pity-party for myself.

Since I last wrote about this, I've developed a new symptom that scares me a little bit. I seem to be having head or neck movements while sleeping, that, in addition to causing neck pain, make me bite down quite hard on my tongue. I've woken up numerous times with a mouthful of blood and a rather large tooth-shaped gouge on the underside of my tongue. This is completely new and startling to me, as most of the movements I experience involve only my legs and arms. It also scares me because all of the symptoms that I have currently, I started having while sleeping and have progressed to having occurrences during the day. I can handle the leg/arm stuff, because I don't see that as ultimately affecting my way of life. But having head or neck movements, too? That could be a problem.

Another thing I've been "tough" about is the fact that there is no "cure" for what I have, because there is no known cause for it. The doctor's that I see can only speculate what the cause is, and from there it is trial-and-error as far as treatment is concerned. There are hundreds of different medications I can take that will control the symptoms, but nothing short of deep brain stimulation or surgery to remove the GMH would ever cure me of what I have.

I'm writing about this now, because early tomorrow morning, I am boarding a train with The Boss and my older sister to head down to Boston for two appointments at Massachusetts General Hospital. Both are follow-up appointments, the first with my neurologist, and the second with a new doctor I've never seen before. We're going to discuss the results of my latest round of testing that I had back in January, and hopefully order a sleep study so they can see for themselves what happens to me when I sleep. I refuse to start any treatment until they have more of an idea of what is going on.

As far as the trip to Boston goes, we'll be staying over one night, and coming home late Friday evening. Since I'm not going to be gone for very long, I'm leaving my laptop at home. Tragically, that means I'll be without a means to read and comment on all the places I frequent. I promise to make the rounds when I get back, but don't think I'm ignoring you if I don't get to your posts or comments until mid-day Saturday.

Since I love you all dearly, I'm going to give you a few options to keep up with me while I'm gone:
  • I'll be updating frequently with Twitter, so if you are at all interested as to what I'm doing (like avoiding subway butt-gropings, or dodging homeless people with Windex bottles, or eating at The Cheesecake Factory), you can check that.
  • You can also e-mail my cellphone (yes, e-mail) by sending short messages to, and I'll do my best to write back.
  • I'll be taking and sending pictures with my cellphone, and uploading them to my Photobucket account. Check that if you'd like to see what strange things I encounter.

And of course, I'll write about the trip when I come back this weekend.

Wish me luck!

P.S. I think I just set a new personal record, for the most hyperlinks in one blog post (eight!).


Moonspun said...

You are so badass to leave us all those contacts for you! :-)
I love your are really talented! I'll probably be off line for much of my vacation, but I'll get sending good wishes to my old stomping grounds of Boston (I grew up 15 miles west) and hoping that you get answers. I bet it's frustrating not knowing, answers, no matter good or bad are easier to deal with.
Safe travels, my friend!

enthalpymama said...

Good luck!! I'm sure everything will go well. Not sure if I'll be able to navigate all the other options of saying 'hello' but I'll check back for sure.

Aub said...

Good luck, man! "See" ya soon.

Miss Grace said...

Wow. Well I truly wish the best of luck to you, and have a LOT of fun. And let us know everything when you get back. said...

Best of luck, Badass. Best of luck.

Badass Geek said...

Moonspun: Thanks for the compliment on my photos! I hope I get some answers, too. The mystery of it all is frustrating.

Enthalpymama: I'm hoping everything goes well, too. Not getting mugged in Boston is my main concern.

Aub: Thanks, man.

Miss Grace: I actually have a little bit of spending money, so I'll be sure to have a little fun at least. I'm hoping the rain holds off.

SWAX: Thanks =)

Sus said...

You will be in our thoughts. (Yes, me and all my many inner voices with be wishing you the best.)

mumma boo said...

Good luck! The storms are blowing through MA right now, so hopefully they're gone before you arrive tomorrow. And watch out for the Charles/MGH T-stop - it's a bitch navigating all those damn stairs with 1000 of your closest friends.

Aunt Becky said...

Good luck! You'll do well. And Mass Gen is a GREAT hospital.

Forever In School said...

Hey, I didn't know about your problem. I hope everything turns out fine. Wish you all the luck and send you lots of positive energy.
I can't wait to read about your trip, when you come back.

Badass Geek said...

Sus: Me and my multiple personalities thank you. =)

Mumma Boo: I checked the forecast for tomorrow for Boston... Rain and thunderstorms. Awesome! The T in general can be fun to navigate. I've been down a few times and I think I have the hang of it now.

Aunt Becky: MGH is a great hospital. I've been there a few times. I can't help but snicker a little bit when I enter the "Wang" Ambulatory Center. Heh. Wang.

FIS: I'm sure everything will be fine, its just a little unnerving being told by one of the region's top neurologists "We don't know what you have." Hopefully the rest of the trip will be entertaining, and I'll buttloads of funny things to write about.

Lola said...

Oh, Badass, I wish you only good news and a safe trip. Don't worry about Boston. It's not that bad at all as long as you stay the hell out of certain parts. MGH is a fine area, so no worries, man. Downtown is very safe, and if you're staying in that area, there's lots to do and eat. Make sure you guys have some fun, too.

Take your camera, as the Public Garden has the most incredible giant trees to photograph. They are so old and beyond gorgeous!

Good luck. I'll be thinking about you.

Heather said...

Good luck sweetie, and give us all the dirty details when you get back.

Badass Geek said...

Lola: I'm sure it will be a good trip. I have a lot of questions, but I'm sure the answer I'm going to get is "We don't know." I thought about taking my camera, but its supposed to rain while we're down there so I don't want to risk it getting damaged.

Heather: I'll make the details dirty, just for you.

Indy said...

Hope everything is figured out for you. Best wishes.

Badass Geek said...

Indy: Thanks for the well wishes, and thanks for coming by. Hope you come by again!

Lil Sass said...

I mean, what can I possibly say that hasn't already been said? I walked past the sleep clinic today and thought of you ;-)

Bahstan rocks, Mass Gen rocks, and GOOD LUCK! Don't be a tough guy. Utilize your support system that you have with you and take it one moment at a time. I know how draining these things can be.

And in closing, you are by far, the most comment-attentive blogger in the universe!


Daddy Files said...

Even though I'm sure you don't need it, good luck to you my new friend. And enjoy Boston. I lived there for two years and loved it.

Employee No. 3699 said...

Sending you prayers and wishing you good luck/news. I don't do the twitter thing, but I will be thinking of you.


Insane Mama said...

Wow, good luck!

Badass Geek said...

Lil Sass: I've tried to be tough about all of this, but I reached a breaking point yesterday. I'll be writing about it later. Oh, and as far as the comments go? I just like to provide a little extra service. =)

Daddy Files: Thanks, man. Boston was an interesting experience, but I'm always glad to get back to my small hometown.

Employee No. 3699: Thanks! I'm (obviously) back from Boston now, and I'll be writing about my experience today. Thanks for the e-mail, too!

Insane Mama: Thanks =)

scatterbrain said...

And breath!

Now you need to re-charge your batteries, consider everything, let go and go with the flow.

Forgive me! Don't mean to sound like some kind of preaching expert. I'm not, just trying to put myself in your shoes.

I'm glad that you're married - belatedly discovered during a site trawl - it's good to have someone by your side when things life weird.

Meg said...

Good luck!

Badass Geek said...

Scatterbrain: You didn't sound preachy, so no worries.

Meg: Thanks! Your blog design is rockin', by the way.

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