Go ahead and click on the link. I'll be here waiting for you to come back.
All done? Okay, good.
I haven't written much about my health since then, because I'd feel like I was complaining or seeking sympathy for my problems. What I have going on is nothing compared to what other people go through, and I don't want to make a big deal out of it. With that said, I want to mention a couple of things without it coming off as if I'm throwing a pity-party for myself.
Since I last wrote about this, I've developed a new symptom that scares me a little bit. I seem to be having head or neck movements while sleeping, that, in addition to causing neck pain, make me bite down quite hard on my tongue. I've woken up numerous times with a mouthful of blood and a rather large tooth-shaped gouge on the underside of my tongue. This is completely new and startling to me, as most of the movements I experience involve only my legs and arms. It also scares me because all of the symptoms that I have currently, I started having while sleeping and have progressed to having occurrences during the day. I can handle the leg/arm stuff, because I don't see that as ultimately affecting my way of life. But having head or neck movements, too? That could be a problem.
Another thing I've been "tough" about is the fact that there is no "cure" for what I have, because there is no known cause for it. The doctor's that I see can only speculate what the cause is, and from there it is trial-and-error as far as treatment is concerned. There are hundreds of different medications I can take that will control the symptoms, but nothing short of deep brain stimulation or surgery to remove the GMH would ever cure me of what I have.
I'm writing about this now, because early tomorrow morning, I am boarding a train with The Boss and my older sister to head down to Boston for two appointments at Massachusetts General Hospital. Both are follow-up appointments, the first with my neurologist, and the second with a new doctor I've never seen before. We're going to discuss the results of my latest round of testing that I had back in January, and hopefully order a sleep study so they can see for themselves what happens to me when I sleep. I refuse to start any treatment until they have more of an idea of what is going on.
As far as the trip to Boston goes, we'll be staying over one night, and coming home late Friday evening. Since I'm not going to be gone for very long, I'm leaving my laptop at home. Tragically, that means I'll be without a means to read and comment on all the places I frequent. I promise to make the rounds when I get back, but don't think I'm ignoring you if I don't get to your posts or comments until mid-day Saturday.
Since I love you all dearly, I'm going to give you a few options to keep up with me while I'm gone:
- I'll be updating frequently with Twitter, so if you are at all interested as to what I'm doing (like avoiding subway butt-gropings, or dodging homeless people with Windex bottles, or eating at The Cheesecake Factory), you can check that.
- You can also e-mail my cellphone (yes, e-mail) by sending short messages to firstname.lastname@example.org, and I'll do my best to write back.
- I'll be taking and sending pictures with my cellphone, and uploading them to my Photobucket account. Check that if you'd like to see what strange things I encounter.
And of course, I'll write about the trip when I come back this weekend.
Wish me luck!
P.S. I think I just set a new personal record, for the most hyperlinks in one blog post (eight!).