I promised a more thorough explanation as to why The Boss and I spent a few days last week in the hospital with Baby Badass, and I will give you that explanation. For obvious reasons I'm going to leave some parts out, focusing this post on the more important parts of what has come to pass.
Long story short, The Boss and I had Baby Badass examined for some odd muscle movements she had been having sporadically. We noticed that when she was tired, she would sometimes drop her head down to her chest and her arms would lift up. This would happen even when laying flat on her back. Given my medical history with neurological dysfunction, we feared she might have inherited something.
After two days in the hospital, during which Baby Badass was subjected to a 24-hour EEG, blood testing, and a sedated MRI, her neurologist diagnosed her with Infantile Spasms (IS). There is a lot of scary information on the internet about IS, and as is often the case with medical things, a lot of it is subject to opinion and each case of IS is different.
In the case of Baby Badass, it is thought that her case is less severe than most because of how advanced she is in reaching her milestones. Those are the doctor's words, not those of her proud parents. They were all impressed at how strong she is physically, and how further along she is compared to other babies her age. If she was less developed, the impact of whatever is wrong neurologically that causes the physical symptoms of IS would be greater. Simply put, the more advanced the child, the less life-changing a diagnosis of IS is.
She'll be on medication to control the symptoms, and how long she'll be on the medication depends upon how well she responds to it. There are some side effects, most notably peripheral vision loss. We'll be having regular checkups with her neurologist and an ophthalmologist to make sure that everything is going in the direction it should. Best case scenario is that she'd be weaned off the medication in after six or twelve months.
It was unbelievably difficult and heartbreaking to have to sit back and watch off of this happen to my daughter. Fortunately for us, she was very well behaved and tolerant of all the poking and prodding and testing the doctors did, not fussing or acting out even once. We are so thankful to have a daughter like her, and thankful that the diagnosis for her was not anything worse.
Happy Monday, folks.