Monday, January 9, 2012

In Which I Recap

I promised a more thorough explanation as to why The Boss and I spent a few days last week in the hospital with Baby Badass, and I will give you that explanation. For obvious reasons I'm going to leave some parts out, focusing this post on the more important parts of what has come to pass. 

Long story short, The Boss and I had Baby Badass examined for some odd muscle movements she had been having sporadically. We noticed that when she was tired, she would sometimes drop her head down to her chest and her arms would lift up. This would happen even when laying flat on her back. Given my medical history with neurological dysfunction, we feared she might have inherited something.

After two days in the hospital, during which Baby Badass was subjected to a 24-hour EEG, blood testing, and a sedated MRI, her neurologist diagnosed her with Infantile Spasms (IS). There is a lot of scary information on the internet about IS, and as is often the case with medical things, a lot of it is subject to opinion and each case of IS is different. 

In the case of Baby Badass, it is thought that her case is less severe than most because of how advanced she is in reaching her milestones. Those are the doctor's words, not those of her proud parents. They were all impressed at how strong she is physically, and how further along she is compared to other babies her age. If she was less developed, the impact of whatever is wrong neurologically that causes the physical symptoms of IS would be greater. Simply put, the more advanced the child, the less life-changing a diagnosis of IS is.

She'll be on medication to control the symptoms, and how long she'll be on the medication depends upon how well she responds to it. There are some side effects, most notably peripheral vision loss. We'll be having regular checkups with her neurologist and an ophthalmologist to make sure that everything is going in the direction it should. Best case scenario is that she'd be weaned off the medication in after six or twelve months. 

It was unbelievably difficult and heartbreaking to have to sit back and watch off of this happen to my daughter. Fortunately for us, she was very well behaved and tolerant of all the poking and prodding and testing the doctors did, not fussing or acting out even once. We are so thankful to have a daughter like her, and thankful that the diagnosis for her was not anything worse.

Happy Monday, folks. 

12 Comments:

Sherry said...

I understand how you feel and my heart breaks for you. There is nothing more painful for a parent than watching your child go through something you would gladly take upon yourself. You'll make it through this and much more. Parenting is hard but worth every moment.

Charcoal Renderings said...

I'm so sorry about all of this, and I'm wishing all of three of you the best. If you feel like you need a pick-me-up care package at any point, I'm awesome at that sort of thing.

Arctic Hipster said...

Best Wishes to Baby Badass, and may you have some badass relaxation time as well.

Lisa said...

My son was born with a congenital heart defect and some of the best information I found online came from other bloggers. Make sure you seek those out between the big bad scary sites. Sending peaceful healing vibes your way.

Chuck said...

Glad to hear the news is fairly good and that she is being treated. I am rooting for Baby Badass to take on the world!

Courtney said...

What everyone else said. It must be a very difficult time right now.

Melissa said...

i know your heart hurts...but dang...she got through it like the badass she is!

praying for you still!

Amy said...

Thank you so much for the update. I cannot imagine how hard all of this must have been. I continue to keep your baby girl in my prayers. Sounds like she's an amazing little girl.

Badass Geek said...

To All: Thank you all very much. The internet is a great thing, to allow people to connect like this. I appreciate every single one of you.

Jennifer Gleason said...

I'm really sorry about the latest news. I hope everything turns out fine for Baby Badass. I'll be praying for you guys.

kristina said...

Thinking of you guys... xoxo

RAY J said...

Hope everything is going well! Like I mentioned on Twitter, having a little one in the hospital is no fun at all! We spent a week on the pediatric floor of our hospital when Jay was just a few weeks old as he wasn't eating enough to grow... watching them run test after test on him, sticking him with this and that for blood and the feeding tube he had have the whole time... not fun at all!

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